Can-Do-Ability: Answers and Solutions from my personal experiences of living with a disability

Nodding Syndrome

23 Nov 2014I recently heard about this really devastating syndrome on the radio and it made me very sad that in Uganda, Nodding Syndrome has taken hold of young children and ruined their lives.

What starts out as continuous nodding, leads to seizures, the children then stop talking and stop growing. Their lives are ruined and they can no longer function at all.

The worst part about the syndrome is the lack of information about and the families despair at not being able to help their child.

There has now been medical teams brought in that have given the children medication they are responding to. They are slowly able to break out of their own little world the syndrome has locked them in and start to function again.

My only hope is that the medication can have long lasting effects and that they can find a way to stop the nodding syndrome before it begins.

For more on Nodding Syndrome, go to: http://www.npr.org/blogs/parallels/2013/06/02/185787683/nodding-syndrome-a-devastating-medical-mystery-in-uganda




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